One year. Same disease. A very different voice. This is what ALS sounds like after 12 months. Every May 19, I’ll document my voice—until I no longer can. #ALS #VoiceProgression #GoFindSomeJoy #LouGehrigsDisease #TerminalIllness ALSAwareness BeforeAndAfter OneYearLater MND VoiceBanking | Darin Nakakihara
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FacebookDarin Nakakihara
One year. Same disease. A very different voice. This is what ALS sounds like after 12 months. Every May 19, I’ll document my voice—until I no longer can. #ALS #VoiceProgression
Darin Nakakihara. Darin Nakakihara · Original audio. One year. Same disease. A very different voice. This is what ALS sounds like after 12 months. Every May 19, I’ll document my voice—until I no longer can. #ALS #VoiceProgression #GoFindSomeJoy #LouGehrigsDisease #TerminalIllness ALSAwareness BeforeAndAfter OneYearLater MND VoiceBanking
345.9K views2 months ago
ALS Symptoms
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For Sam, one of the hardest parts of her ALS diagnosis was coming to terms with eventually losing her voice. Using Acapela Group’s voice banking solution, Sam preserved this essential piece of her identity. Follow Her ALS Story to learn more about women with ALS. | Tobii Dynavox
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For Sam, one of the hardest parts of her ALS diagnosis was coming to terms with eventually losing her voice. Using Acapela Group’s voice banking solution, Sam preserved this essential piece of her identity. Follow Her ALS Story to learn more about women with ALS. | Tobii Dynavox
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For Sam, one of the hardest parts of her ALS diagnosis was coming to terms with eventually losing her voice. Using Acapela Group’s voice banking solution, Sam preserved this essential piece of her identity. Follow Her ALS Story to learn more about women with ALS. | Tobii Dynavox
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ALS has stolen my voice. I voice banked right after diagnosis (the video) and I didn’t like the voice because I sounded like I had ALS So a year ago my pre-diagnosis voice was cloned using AI. Voice cloning wins hands down. And it was free My AI cloned voice was a total success and with different apps I can add different moods to it like sarcastic or happy. It sounds like how I used to. I love it. I mean I don’t want ALS but at least I have a good voice when I need it. @scottmorganfoundation and
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Through the innovative ALS Voice Banking Program at #Ochsner, patients like Cille Norman are giving a voice to future ALS patients: their own. | Ochsner Health
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ALS took away a young mother's ability to speak. Now, AI is helping her communicate using a program that sounds like her old voice. https://abcnews.visitlink.me/8KfU-p | ABC News
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It didn’t really sound like me. Turns out you can tweak your AI voice clone. Makes sense on mine because I didn’t provide a lot of audio to recreate my voice from. Erin here. And I have ALS. ALS has really messed with me but technology has been kind . Btw today’s panel is sponsored by @iamalsorg and Im so happy to volunteer and be a part of it. @bridgingvoice makes the complicated way easier. @scottmorganfoundation bringing me in on the power of AI from the date of my diagnosis . #alsawareness #
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When I was first diagnosed with ALS, I was experiencing some hoarseness in my voice and mild slurring. I could not imagine life without the ability to talk. I asked God to spare my voice for me! The symptoms I was experiencing completely plateaued. However, today…the voice changes are less noticeable to others around me, but are significantly impacting my quality of life every single day. Using my voice is so exhausting. Now I’m OK to lose it. But now I don’t want to lose my hands! Now I fi
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